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Hyd Child Receives a Super Expensive Medicine to Survive

There have been multiple stories of how expensive pharmaceuticals can be for modern health. While some of them produce great miracles in solving health problems that previously would kill patients without a solution, they come with a big price tag. For example, when a botulism cure for babies was created, the average cost of the drug was over $21,000 a dose.

Social Media to the Rescue

In the case of Zolgensma, a drug created by Novartis, a similar price tag applies. And for a small Hyderabad boy named Ayaansh, it was a life-changing treatment. Ayaansh suffers from Spinal Muscular Atrophy, or SMA, a condition that essentially weakens nerve cells in the back and spinal connection to the brain. Zolgensma has been identified as a viable pharmaceutical option for children under 2 years of age with SMA. Using gene therapy, the drug essentially helps the body replace a faulty SNM1 gene with a normal one. It’s delivered intravenously one time, so the treatment can only be applied in a medical setting by a physician. Doctors identified Zolegensma as an effective treatment for Ayaansh, but the price of the drug was going to total some 16 million rupees. Ayaansh’s parents didn’t have that kind of money, nor did their family.

However, with a bit of awareness and the Internet through social media, Ayaansh’s parents were able to garner the financial help needed from 65,000 donations via crowd-funding. Almost four months later, the charity drive pulled together the necessary funds to cover the cost of the Zolgensma treatment, giving Ayaansh a real chance at recovery and a longer life than he would have without the drug.

Ayaansh is Given a Real Chance

With the financial matters squared away, Ayaansh was provided the treatment at the Rainbow Children’s Hospital, located in Secunderabad. Doctors monitored the reaction in the child for a given period, and ultimately Ayaansh was released without ill side effects. Currently age three, Ayaansh, may now have the ability to enjoy a better life outlook, thanks to the help provided by many donors across India working together via the power of crowd-funding. Some of the more notable donors for Ayaansh included Virat Kohli and spouse, Anushka Sharma, as well as other famous names like Sara Ali Khan and Dia Miza. Even the government helped things along by disregarding the normal import regulations and duty taxes as well as expediting the drug delivery from Novartis. Normally, the import duty tax would have equaled 6 million rupees before the drug could even be used in-country.

Expensive Cures Are Always Paid By Someone

The cost of drugs like Zolgensma continue to create controversy, but the fact remains that the research and science that goes into their creation is expensive. The market approach to allowing drug companies to profit from their efforts remains one of the most effective ways to bring new medical technology into being, but someone, somewhere has to pay for the related cost. Historically, drug companies have relied on developed nations’ economies like those in the West to pay for the initial cost of bringing a new, effective drug to market, meaning many other countries had to wait until the drug became affordable as patents expired. However, crowd-funding and the Internet are obviously changing the dynamics of drug access, as was seen in the case of Ayaansh above.

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Missing Pregnant Cat Found at Ottawa Airport After 11 Days

Jess

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A pregnant cat named Athena was found at the Ottawa International Airport, almost two weeks after she disappeared in the parking area. She had traveled from Winnipeg to Ottawa. The team from Furry Tales Cat Rescue discovered her around midnight on a Tuesday, and thankfully, she’s in good shape.

Volunteer Marta Burczycka from Furry Tales Cat Rescue expressed immense joy and gratitude for Athena’s safe return, highlighting her strong maternal instincts to protect her unborn kittens. The rescue operation caught attention after a helpful tip from Blake Fawcett, an employee working near the airport, who notified the rescue team.

Athena was initially sent to Ottawa on March 21 to get better veterinary care and a safe place to have her kittens. Unfortunately, she escaped when her carrier opened accidentally. For 11 days, volunteers and the rescue team worked tirelessly, setting traps and distributing flyers across the airport to find her before she gave birth.

The community effort was huge, with many airport employees and volunteers spreading the word and looking out for Athena. Janice Richard, one of the trappers, mentioned how they found Athena hungry but still pregnant, emphasizing the collective relief and happiness at her safe recovery.

The rescue story ended happily with Athena being taken care of and preparing to have her kittens in a safe and loving environment, thanks to the persistent efforts of the rescue team and the community’s support.

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America’s Youngest Teacher Started Her Career at 16

Kelly Taylor

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Shania Muhammad became a teacher at just 16 years old, after graduating from college at 15. She grew up in a home where learning was very important. She told “Good Morning America” about how her older brothers and sisters were big influences on her. They did well in school, which inspired her to do the same.

In seventh grade, her father noticed her advanced skills and started preparing her for college entrance exams. This led to her enrolling in college early and feeling like a superhero because she was so young. By 15, she was already finished with college and soon got a job offer to teach.

Muhammad waited until she was 16, so she could drive herself to work, and then started teaching 8-year-old students. These students see her as an adult and respect her, she says. In her classroom, she loves to keep the kids active with group work, presentations, and debates, creating a dynamic and engaging environment.

She encourages open communication in her class, telling her students they can talk about anything with her. Muhammad believes it’s important to have more confidence in success than in failure.

In her conversation with “Good Morning America,” Muhammad shared her view on facing the unknown with courage rather than fear. She encourages people to not hesitate and to create opportunities for themselves if they don’t already exist.

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Millions Tune In To See Conservation Group Save Seals

Kelly Taylor

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Ocean Conservation Namibia (OCN) is a group with a big heart and an important mission. Based in Namibia, a country with long, beautiful coastlines, OCN is dedicated to saving seals, especially the cute baby ones, from dangerous plastic and fishing lines.

Imagine you’re at the beach, and you see a group of seals playing and lounging around. Suddenly, you notice something’s wrong. One of the seals is stuck, tangled up in a mess of plastic or fishing line. It’s struggling and can’t get free. That’s where OCN comes in.

The team at OCN, led by Katja and Naude Dreyer, a married couple passionate about the ocean and its creatures, runs across the beach, right into the groups of seals. They’re on a mission to find any seal that’s trapped in harmful debris. Once they spot a tangled seal, they quickly and carefully cut off the entangling mess and set the seal free.

Since 2020, OCN has rescued about 3,000 seals! That’s a lot of happy, healthy seals swimming back in the ocean because of their efforts. Their rescue missions became super popular online during the pandemic. People all over the world watched their videos, feeling a bit better seeing the seals being saved during tough times.

OCN’s work is unique and impactful. Jeff Harris, a research ecologist, mentioned that the number of seals OCN saves is much higher than in other parts of the world. While he managed to free 100 sea lions in his best year, OCN often saves that many seals in just a month!

The Dreyers started OCN about twelve years ago. Initially, Naude would try to free the seals using a paddle or by grabbing them, but it was tough. Things got better when they received a special seal rescue net, making their missions easier and safer.

During the pandemic, when their kayaking business paused, they focused even more on rescuing seals. They also shared their work online, touching people’s hearts worldwide. Their video titled “Baby seal thanks his rescuers” got over a million views!

OCN not only raises awareness about the seals but also shows us the bigger problem – our oceans are filled with trash. They’ve shown that every little bit helps and that we can all do something to protect our marine life.

With donations from kind-hearted people, OCN has grown, now having a team of seven dedicated members. They’re doing more than just rescuing seals; they’re inspiring others to care about our oceans and the creatures that call them home. The Dreyers themselves have even changed their lifestyle, choosing not to eat fish and other animal products, to live in a way that respects the animals they work so hard to save.

So, Ocean Conservation Namibia is not just about saving seals; it’s about changing the way we see and treat our oceans, one rescue at a time.

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Hero Bus Driver Saves Students from Fiery Danger in New Orleans

Kevin Wells

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In a heart-stopping incident in New Orleans, a school bus driver named Kia Rousseve became a local hero when she saved nine students from a burning bus. Her quick actions turned a potentially tragic situation into a story of courage and quick thinking.

It was a regular Wednesday morning, and Rousseve was on her usual route, about to make her fifth stop, when she noticed something alarming: smoke was coming from the bus. Without a moment’s hesitation, she knew she had to act fast. “As soon as I seen the bus smoking, my instinct was get them off of the bus,” Rousseve recounted.

A little girl on the bus ran up to her and confirmed her fears, saying the bus was on fire underneath. Rousseve didn’t waste a second. She stopped the bus and made sure all the students got off safely. “I turned the bus off and got off. When I got off, the bus blew up,” she said, describing the terrifying sounds of the explosions.

Rousseve’s primary thought during the ordeal was her child, which fueled her determination to ensure the safety of all the students on board. Her employer, Community Academies of New Orleans, praised her actions as “Courage on wheels.” Having driven school buses for three years, Rousseve demonstrated experience and bravery that day.

Feeling grateful and proud, Rousseve believes a faulty alternator was the cause of the fire. She’s relieved and happy that she could save the lives of the children, as well as her own. “I feel great about saving other kids’ lives and saving my life,” she expressed, adding that she felt divine protection was at play during the emergency.

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Mackenzie Scott’s Big Give: $640 Million to Nonprofits

Shannon Jackson

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Mackenzie Scott has made headlines again with her generous donations to nonprofit organizations. Initially, Scott promised to give $1 million each to 250 nonprofits, but she surprised everyone by more than doubling her donation! Now, she’s giving a whopping $640 million to 361 organizations.

So, who is Mackenzie Scott? She’s a billionaire philanthropist who likes to help out by giving her money to groups that do good things for communities. This time, her organization, Yield Giving, decided to help even more than planned because of the great work these nonprofits are doing.

Scott worked with an organization called Lever for Change to find these nonprofits. They had a big, open call where nonprofits could apply for the money, and the response was amazing. Lever for Change said they were so impressed by the work these groups are doing that they wanted to give money to more of them.

Here’s how it broke down: 279 top-rated nonprofits got $2 million each, while another 82 organizations received $1 million each. These groups do all sorts of important work, like helping people get back on their feet after being in jail, or creating theater programs with young people in Los Angeles.

What’s really cool is how they decided who got the money. It wasn’t just a few people making all the decisions. Instead, the nonprofits got to score each other, and then a panel of experts made the final picks. This way, lots of different voices helped choose the winners.

Scott and her team believe it’s important to shine a light on these organizations that are making big changes but might not always get noticed. They want to make sure these groups have what they need to keep doing their great work.

Mackenzie Scott said sharing information about these donations is important because it helps others see the good that comes from giving. She hopes that by talking about it, more people will be inspired to help out in their own ways.

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